The parents of Alta Fixsler, two – who is in constant pain and can’t live without life support – have issued a desperate plea for her to be allowed to spend the final days of her life with them at home
The parents of a child who can’t survive without life support have issued an emotional plea for her to be allowed to spend her final days alive at home.
Doctors say two-year-old Alta Fixsler has no “conscious awareness” and is in constant pain after a premature birth left her with a severe brain injury.
Her mum Chaya Fixsler has said she is desperate to bring her child home to “give her everything I can” before she dies.
Chaya and her husband Abraham lost a High Court battle last year to stop Alta’s life support being withdrawn by Manchester University NHS Foundation Trust.
The couple say the decision flouts their parental rights and ignores their faith as Hasidic Jews.
They are now battling with her care provider to let the infant spend her final days at their home in Salford, Manchester.
Their request is currently barred on health and safety grounds, the couple told Sky News.
But, Abraham and Chaya say they have addressed the issues and refurbished a room they want their daughter to spend her last days in.
“I want to take her home, we love her, we want her, and I want to give her everything I can,” Alta’s mother Chaya told Sky News.
Her parents have confessed they have not decorated the space with toys, colourful walls or family photographs to help manage their low expectations but high hopes for Alta’s recovery.
“She’s part of our family. Every child deserves to be a part of a family,” Chaya said.
The Fixsler’s home is just 25 minutes away from Alta’s hospital.
They say the distance between them and their beloved child means they’re worried about missing the final moments of her life.
If she were being treated at home this would not happen, they say.
Abraham says he was called with concerns for Alta on a Saturday, the Jewish Shabbat, when Hasidic Jews are unable to use transport of electronic items.
He said “I was not allowed to go by car so I walked from here to the hospital”.
Getting to the hospital by foot took him between one-and-a-half and two hours.
A spokesperson for Manchester University NHS Foundation Trust said: “We recognise that this is an incredibly difficult time for Alta’s family and we will continue to support them.
“Due to patient confidentiality, and ongoing legal proceedings, we are unable to comment further.”
The local Jewish community are supporting the Fixslers.
One member of that community, Rabbi Jonathan Guttentag, says the hospital’s interference with the wishes of the parents is “a matter of faith but also a matter of humanity”.
“To force parents, to invade this family’s structure in this way and to take away this decision from parents is a matter of faith but also a matter of humanity,” Rabbi Guttentag, International Liaison at the Coalition for Jewish Values, said.